Related Fragile X Websites
Fragile X Association of Australia
http://www.fragilex.org.au
The Fragile X Society (UK)
http://www.fragilex.org.uk
FRAXA (USA)
http://www.fraxa.org
National Fragile X Foundation (USA)
http://www.fragilex.org
Fragile X Association Southern California
http://www.fraxsocal.org
Fragile X Research Foundation of Canada
http://www.fragile-x.ca
Interessengemeinschaft Fragiles-X e.V. (Germany)
http://www.frax.de
Fragile X Association of Sweden
http://www.fragilex.se
Community Resources
Active Foundation
The foundation aim to provide a better life for people with intellectual disabilities and their families through understanding, commitment and support.
Website: http://www.activ.asn.au
Australasian Genetic Alliance (AGA)
Network of peak organisations that represent genetic support groups, individuals and their families in the Australasian region who are affected by a genetic condition or a genetic predisposition.
Website: http://australasiangeneticalliance.org.au
Carers Association of WA Inc
The Carers Association is the peak body representing the interests of all carers in Western Australia. A carer is an individual who looks after a family member or friend who has a mental or physical illness or a disability, or who is Frail Aged. To actively enhance the quality of life of all carers in WA. They provide counselling services.
Website: http://www.carerswa.asn.au
Disability First Stop
Disability First Stop is an innovative service that will assist people and their families to get the help they need when a person is newly diagnosed as having a disability. Disability First Stop directs people who have had an accident or have been recently diagnosed as having a disability, towards the appropriate agencies to give them and their families the support they need.
Website: http://www.disabilityfirststop.asn.au
Ethnic Disability Advocacy Centre
The objectives are to promote, advocate, support, information, referral, networking, lobbying and training people with disabilities from culturally and linguistically diverse backgrounds and their families and carers.
Website: http://www.edac.org.au
Genetics Education, The Centre for
The centre is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them.
Website: http://www.genetics.com.au/services/counsel.htm
Genetic Services of Western Australia
This service provides a state-wide comprehensive and fully integrated clinical and laboratory genetic service with equitable access, to enable informed choice in the prevention and treatment of genetic diseases and to reduce the burden of genetic disease in the community. It provides both clinical and counselling services.
Website: http://wchs.health.wa.gov.au/services/genetics
Genetic Support Council of WA Inc
GSCWA is a not for profit organisation that acts as a peak body for genetic support groups in Western Australia and aim to develop and contribute to policies of common concern to genetic support groups and provide genetic support information, resources and referral services to individuals and genetic support groups.
Website: http://geneticsupportcouncil.org.au
Health Consumers’ Council of Western Australia Inc
The Health Consumers' Council is an independent community based organisation, representing the consumers' 'voice' in health policy, planning, research and service delivery. The Council advocates on behalf of consumers to government, doctors, other health professionals, hospitals and the wider health system.
Website: http://www.hcc-wa.asn.au
Kalparrin Centre, The
Including: Parents of Children with Disabilities
The Kalparrin Centre is an organisation committed to providing practical and emotional support to families of children with special needs who require ongoing care and support and families of children with special needs who are under the unique stress of awaiting diagnosis or whose diagnosis is unknown. They provide disability related self-help or support groups.
Website: http://www.kalparrin.org.au
Sussex Street Community Law Service Inc. Perth
Advocacy Service for People With Disabilities.
Website: http://www.sscls.asn.au
